A Renewed Momentum? The England Rare Diseases Action Plan

Rare Diseases

A Renewed Momentum? The England Rare Diseases Action Plan

Today – on Rare Disease Day – the Government unveiled the England Rare Diseases Action Plan 2025. It marks a key step in maintaining momentum in the care and support of those affected by rare conditions before the UK Rare Diseases Framework expires in 2026. The Rare Diseases Action Plan outlines how the health system

Rare Disease Action Plan: What’s in store for 2024

There are 300 million people worldwide living with a rare condition. #RareDiseaseDay

Every year, on the last day of February, the global rare disease community comes together to raise awareness and advocate for positive change for the 300 million people worldwide living with a rare disease. To mark Rare Disease Day, the Department of Health and Social Care have published their third Rare Diseases Action Plan for

Newborn Screening: the road to 2024

As we look forward to 2024, our Senior Account Executive, Robbie Lockyer, considers the outlook for newborn screening for rare diseases, and discusses whether the UK is will continue to fall behind our European neighbours.  Since the 1950s, when the newborn blood spot (NBS) screening programme was first introduced (commonly referred to as the heel prick

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We’re an award-winning specialist healthcare communications agency and founders of the Patient Advocacy & Centricity Tracker tool, as well as the global Patient Partnership Index.

The Health Change Makers.

OVID Health is a trading name of Ovid Consulting Ltd (Company No. 11372061)
registered in England at B19, SBC House, Restmor Way, Wallington, SM6 7AH.
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OVID Health is a trading name of Ovid Consulting Ltd (Company No. 11372061)
registered in England at B19, SBC House, Restmor Way, Wallington, SM6 7AH.

Site by XYCO